DSF Biennial Family & Professional Conference

The DSF Biennial Family & Professional Conference is a transformative event that unites families affected by Dravet syndrome, healthcare providers, researchers, and industry partners. This gathering aims to foster collaboration, education, and advocacy, with the overarching goal of accelerating research, improving care, and strengthening support for all impacted by the condition. Attendees will have the opportunity to connect with others, engage with leading experts, and gain insights into the latest advancements in both scientific research and clinical care.The conference, hosted at the Renaissance Orlando at SeaWorld, spans three days of programming that includes a mix of scientific sessions and social events tailored to provide value for everyone involved. Key topics addressed during the conference will encompass cutting-edge research, clinical care advancements, and the lived experiences of families, empowering attendees with practical tools and resources. Healthcare professionals will also benefit from valuable insights into the latest treatment options and care strategies to enhance patient care. A special session for first-time attendees will help newcomers navigate the event and maximize their experience. Moreover, the Patient Activity Room will offer engaging activities specifically designed for patients affected by Dravet syndrome, ensuring a supportive atmosphere. Concurrently, the Sibling Camp will provide exciting opportunities for siblings to bond, share experiences, and understand their unique roles within the family. The conference will also feature the heartfelt Wings of Hope butterfly release, a ceremony honoring those lost and celebrating the resilience of the community. Throughout these three days, the DSF will focus on creating a space for connection, hope, and learning, culminating in a dinner reception where the Ciara’s Spirit of Hope Award will be presented to recognize outstanding advocacy and resilience within the community. Overall, this event is not just a conference; it is a powerful opportunity to unite and work toward a brighter future for those living with Dravet syndrome.